För många är julen en familjehelg och gemenskap, men tyvärr tvingas en del att fira julen i ensamhet och i utanförskap. För oss med funktionsvariation är det också viktigt kunna fira julen, med allt från förberedelserna till att slutligen kasta ut julgranen, om man nu har en sådan.
Men varför ska man behöva vara ensam? Är jag inte tillräckligt bra? Duger jag inte? Mitt självförtroende sviktar. Är mitt rullstolsberoende en nackdel? Eller betyder det något för andra att jag alltid är ”två”, det vill säga jag och min assistent? För många innebär säkert funktionsvariationen flera ”egenskaper”, en del har syrgas-beroende, behov av talhjälpmedel eller en elektrisk värmefilt. Eller två personliga assistenter.
Det finns många sätt vi kan vara annorlunda på, men vi måste ändå kunna känna oss som fullvärdiga människor. Ett dåligt självförtroende får inte sänka oss. Vi får inte låta andra människor ta sig rätten att bestämma över oss. För att komma dit och kunna tro på sig själv måste man också acceptera alla sina egenskaper, envishet till exempel, och alla sina kännetecken, som det faktum att man är rullstolsburen som ett annat exempel. Jag är både envis och rullstolsburen.
Kanske skulle vi kunna ändra vårt eget beteende? Vi kan ju faktiskt bjuda hem andra till oss, om vi inte kan bli bortbjudna på grund av otillgänglighet. Jag har till exempel bjudit hem både kamrater och tillbehör, när jag inte hade plats att laga mat fick istället gästerna ta med sig maten.
Vi får inte falla undan och känna utanförskap. Vi är likvärdiga och jämlika. Alla måste få vara delaktiga i samhällsgemenskapen.
Julen är mer än något en högtid som vi, och flera med oss, vill fira tillsammans. Jag tycker inte att man ska behöva sitta ensam hemma när andra firar jul.
Apropå utanförskap och jul, jultomten är utanför hela året utom på julafton. Då släpps han in.
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